Menu
Login

Search Results

adelaide brisbane butterfly children children debra disease editors picks hiking million dollar run parenting

‘Worst disease you’ve never heard of’

THESE adorable siblings play together at their Sydney home like any other children — but bumping into a wall or a chair can...

children disease editors picks epidermolysis bullosa (eb) parenting trial

14th Jan. 2018 5:01 AM

Professor Dedee Murrell, (left) of Premier Specialists in Sydney, is running Australia's first clinical trials to find a treatment for rare skin disease Epidermolysis Bullosa which causes painful blistering and lesions. Pictured with Mohammed, three, and Siddiqah, five, and their mum and dad, Ida and Aiman.

Runner's epic journey for Butterfly Children reaches Valley

Andrew Biszczak is on a mammoth Million Dollar Run from Adelaide to Brisbane, and he needs your help to support children...

adelaide brisbane butterfly children epidermolysis bullosa (eb) million dollar run

29th July 2017 4:07 PM

DETERMINED: Andrew Biszczak with Jessy having a well earned rest in South Grafton.

Pyrenees hike in aid of a rare skin disease

SARAH Harvey will combine her love of hiking with a worthy cause when she walks through the Pyrenees in June.

debra epidermolysis bullosa (eb) hiking pyrenees

15th April 2017 5:04 AM

WALK ON: Former QT photographer Sarah Harvey will hike through the Pyrenees in June to raise funds for Epidermolysis Bullosa (EB) sufferers. She is pictured here in NZ overlooking Mt Cook.